Haemophilia Foundation Australia
Haemophilia Foundation Australia is committed to the treatment of haemophilia and related bleeding disorders and the complications arising from such treatment. The foundation works for, and represents all people with haemophilia and their families, improving care, support and quality of life through advocacy, education and promotion of research
The Disorder
Haemophilia is a blood clotting disorder in which one of the essential clotting factors is deficient.
Haemophilia is hereditary.
It affects men almost exclusively and is passed on by them through otherwise unaffected females who carry the defective gene. However, about a third of the cases occur in families with no known history of the disorder.
There is no cure for haemophilia. However the development of clotting factor concentrate means it can be managed.
Services include
- Dissemination of information to members and health professionals
- Publication of educational booklets, brochures, books and kits
- Audio visual educational material
- Development of support and counselling services
- Medical information "Passports" for travellers
- Treatment information services
- Family, youth, and adult camps
- Federal and State Government Liaison
- Advocacy on treatment services and treatment products
- Community education
- Liaison with industry groups
Haemophilia Foundation Australia
1624 High Street
Glen Iris, VIC 3146
Ph: 03 9885 7800
Fax: 03 9855 1800
Web: http://www.haemophilia.org.au
Email: [email protected]
ABN: 89 443 537 189 DGR: effective 1 July 2000
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