The Spina Bifida & Hydrocephalus Association of SA was started as a parent support group in 1965 and today provides information, support, an outreach nursing service, specialised employment services, social activities and counselling.

What is Spina Bifida? Spina Bifida means split spine and is the most complex of the congenital disabilities. Spina Bifida results from a failure of the spinal cord to develop within the first month of pregnancy. In South Australia spina bifida occurs, on average, once in every 500 conceptions. The effects can include a lack of sensation and muscle function in the lower body and legs, problems with bladder and bowel function, joint abnormalities and deformities of the back. Approximately 90% of people with spina bifida also suffer from hydrocephalus (commonly known as water on the brain), which is now treated by the insertion of a "shunt" into the brain. In addition, over 80% of adults need to use a wheelchair to maintain mobility. It is known through medical research, that 5% of the population have some form of spina bifida.

Services of the Association include our unique outreach nursing service to people with spina bifida. Outreach nursing staff visit people in their homes and attend to a wide range of problems, such as continence issues and pressure sores. Our staff also work at reducing social isolation and introducing people to recreation and employment opportunities.


Spina Bifida and Hydrocephalus Association of South Australia Incorporated
68 Day Terrace
West Croydon, SA  5008
Ph: 08 8366 5900
Fax: 08 8366 5901
Web: http://www.spinabifida.asn.au
Email: [email protected]

ABN: 22 508 532 920       DGR: 900 154 536

Volunteering: Phone 08 8366 5900 for details OR Email this address [email protected] listing your contact details and how you might be able to help.